A little Gooner needs your help

Grab a chair, open a beer, and chat away! In Tribute to Drama, SE13, and Fabrestuta. R.I.P.

A little Gooner needs your help

Postby Nejch » Thu Apr 15, 2021 11:05 am

Urban, a little Gooner from my home country of Slovenia, needs your help. He was diagnosed with a rare genetic disease called CTNNB1, which results in severe intellectual and motor disability. A team of researchers has offered to work on a possible treatment with gene therapy technology, but as you may know, this is an extremely costly endeavour and it doesn't get enough funding because of the disease's rarity. As a physician myself, I cannot tell you how frustrating it is when the potential technology to help our patients is there, but there's just no financial interest to invest in its development.

The money you donate will not only help Urban, but once the treatment is developed, will be able to help others with this disease as well.

Here's the link which shows the little Gooner (sorry for the cringy music) and the link to the fundraiser site. I hope this is in compliance with the forum rules. Thank you so much to everyone who decides to donate, every little bit helps. :arsenal3:

https://www.youtube.com/watch?v=QlAMzBTEObM

https://www.gofundme.com/f/walking-with-urban
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Re: A little Gooner needs your help

Postby Dejan » Thu Apr 15, 2021 11:51 am

Thanks for the heads up. I will have a look later If I can miss a few bucks.

Try to get in touch with AFTV? They might be able to get the ball roling
Rest in Peace SE13 :(
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